Gratitude Thread
Sounds like a wonderful time, Babby! How amazing that your aunt and uncle had been married 60 years!!! People throw away marriages now, and I fear 50-60 year anniversaries will be a thing of the past....
View ArticleDo your headaches worsen in cold weather?
I'm always with my winter hat on , on winter months...
View ArticleGratitude Post
I think the reason the member (she?) was under review was because the member joined an UNUSUALLY large amount of groups then copied and pasted the identical post to every group she was a member of --...
View ArticleGratitude Post
Thanks for the clarification. I went to the Leaders page to see what may have triggered the review, and the only thing that popped into my mind was the stance on pushing individual beliefs. I didn't...
View ArticleIh New to group but,not to ih
Wow. I'm so sorry you have been through so much. I wish I had some answers for you. I know that often people say the neurosurgeons don't have the best bedside manner. What does your neurologist say...
View ArticleDiamox Side effects
What brand are you taking? I've been on the same brand for 14 years. I have found in talking to others, that certain brands make them feel worse. I rarely ever have the tingles now, only when my hands...
View ArticleBioFeedback?!
I have not, but I know that with some chronic pain, it is supposed to help you deal with it better. Your post is kind of short, so I'm not sure of the details. I also know many people that talk with a...
View ArticleDear mamn or sir
I'm not familiar with shunts, but this is something your doctor(s) should be guiding you on. Have you had this discussion with them? Much depends on how it is working, if you are having complications...
View Articlei cant find any information, can you help?
I'm not sure if I can be of any help either, but slit ventricles are pretty much identified with hydrocephalus. A slit ventricle is an unpliable ventricle. Most of our vents will expand or contract due...
View Articlei cant find any information, can you help?
I'm in various other groups, and slit ventricles are very common with IIH. From what I remember in conversations, slit ventricles were likely what caused the IH, or at least a contributor to the...
View ArticleGlaucoma
That does sound like good news! Could he see actual disc swelling? Good luck finding a new NS. ;)...
View ArticleGlaucoma
It sounds like you have 2 good docs following your vision and that is more than half of the battle. As for the NS, can the office of your former one refer you to someone? Not to be all negative Nancy...
View ArticleQuestion about IIH
It's hard to say if the meds are the cause, but I wouldn't rule it out. They also don't advise the use of any cycline antibiotics for the same reason (tetracycline, minocycline, etc). Will the hospital...
View ArticleNeed another opinoon
It is true that you CAN have elevated pressure without evidence of enlarged ventricles. Some people's ventricles are not as pliable as others. There is a condition known as Slit Ventricle Syndrome, and...
View ArticleHi
I'm not sure I understand. Do you have IH and what does your doctor say about additional meds? Much depends on what other medications you are taking. If in doubt, ask your pharmacist....
View ArticleNeed another opinoon
The only true way to know if you have IH is to have a lumbar puncture done. They will measure your opening pressure, and also examine the fluid to rule out other issues. Typically an MRI is done before...
View ArticleQuestion about IIH
I took one dose of Tramadol and had the worst headache of my life. This was before I was diagnosed with IIH. It took me several days to get rid of it. It is a med that should be used with extreme...
View ArticleRecently diagnosed with IIH
Sorry I'm just seeing this post. First, Diamox can take awhile to get used to. It is important to stay hydrated, and also to have your blood work done to be sure your potassium doesn't drop. I'm not...
View ArticleShunt cost
I have no idea either. Being the type of surgery that it is, that amount wouldn't surprise me though....
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