Wow. I'm so sorry you have been through so much.
I wish I had some answers for you. I know that often people say the neurosurgeons don't have the best bedside manner. What does your neurologist say about all of this?
Are you taking any medications to reduce the pressure? Diamox and/or Lasix? I can't really offer you any medical advice, but I guess if you are still feeling bad, and getting nowhere with your current doctors, maybe a second opinion would be in order....
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