Newly diagnosed and full of concerns
It does take some time to get used to the effects of Diamox, but it isn't perfect for sure. The nastier side effects went away after about 8 weeks. I occasionally have tingling in my hands and feet,...
View ArticleStarted diamox today
Are you seeing an ophthalmologist? You need to be having your eyes checked, especially with the symptoms you are describing. I was seen every 2 months for awhile and am still seen twice a year for...
View ArticleSerious Question about medical marijuana
I'm glad it works for you. I really wish they would make it legal. Thanks for updating!...
View ArticleDiaries and responses.
Good observation, Babby. I've noticed that before in some of my other groups. I've been so busy lately that I haven't kept close watch on this group to notice. The diary feature is nice for those that...
View ArticleDiaries and responses.
That is what I was thinking too. Hopefully others will see this and take note....
View Articlewhat to do?
I'm sorry, I'm just seeing this! First, you said he upped your ultra, do you mean ultram? Ultram is known to raise pressure in people with head injuries, and the maker had a warning about anyone with...
View ArticleChanged diagnosis... again...
What was your pressure reading when the first neuro gave you the diagnosis? Have you been on medication such as Diamox? What made her think it is migraines and not IH? Many people with IH also have...
View ArticleVP Shunt tract pain
Hello to all, I had a shunt placed in 11/2010 and so far no invasive revisions. Only magnetic changes. Im experiencing a cracking and stiff ache on the side of my head where my shunt catheter tract is....
View ArticleVP Shunt tract pain
I don't have a shunt. I do know others that do, and sometimes they do talk about getting kinks in the tubing. It may be a good idea to call and talk to your NS to see what they think, depending on when...
View ArticleFlu syptoms & IIH
What flu symptoms are you asking about? Body aches, fever, vomiting? High pressure can have an effect on a lot of things. My neck and back hurt a lot of the time, but I also have fibro. I would mention...
View ArticleRecently diagnosed and looking for hope :)
Welcome, and I'm so sorry I'm late to reply. I had dental surgery and have been down for over a week. Have they started you on medication yet? The first thing you need to do is take a deep breath. It...
View Articlepain med combo - over-the-counter!!
This is a pretty old post, so it may not get much response. I'm not sure what you are asking. Are you asking if it relieves the pain like a hydrocodone 7.5? For some, they do get relief. The thing is,...
View ArticleSharing my experience with IIH.
I've heard people still referencing her on FB, but like Mary, I'm not sure if she is still in practice....
View ArticleGlaucoma
Thanks! I may check that sight next week. (Getting ready to go camping this weekend. ;) ) I see a glaucoma specialist August 1st. Glaucoma does run in the family way, way back, but no one in this, or...
View ArticleSharing my experience with IIH.
Ok I got in touch with duke dept of Nero and have to get a referral there thanxs. I will post our story this weekend when I have time and not at work...
View ArticleGlaucoma
Yeah, that was the part I kind of got hung up on too. I've read it a few times, and I guess I kind of look at it as cabin pressure in an airplane. If they do it right, it's all good, if it is off at...
View ArticleTerrible nausea post lumbar puncture
I don't recall having nausea post tap, but I did get the horrid low pressure headache. Laying flat was all I could do for 5 days. As Mary said, I'd call and talk to the doctor. Nausea is kind of out of...
View ArticleSpinal tap
You may have a post tap leak. Does the headache subside or stop when you lay flat? If so, it is likely a leak. It is important for you to take it really easy for the next few days. Lay flat, no...
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