Hola!
Yes! I can relate. Not exactly the same, but very similar in some instances. I grew up as the clumsiest child [my mother] had ever seen ! My head seemed to have a magnetic attraction to concrete. I...
View ArticleStenting?!?!?
I'm in a facebook group where this has been discussed. I can't recall exactly who benefits from them, but a few people have them, and some have gone into remission with them. I think it is a very...
View ArticleHola!
I've read far too many stories about people that get shunts, and when they have issues later, the neuro surgeon just dismisses them. I don't understand this. I'm very glad that you ended up with your...
View ArticleHopes for stenting after a LONG road!
I think one thing they do this for is Bilateral transverse sinus stenosis. I'm not completely familiar with all of the medical terminology. Good luck with the angiogram, and hopefully you will be one...
View ArticleSymptoms of VP shunt tubing migration?
I imagine any kind of surgery can disrupt the normal function of your body's systems, but I haven't heard anything specifically about edema before. Is the edema only abdominal? Or is it in your legs as...
View ArticleSymptoms of VP shunt tubing migration?
Can they do a scan or something to make sure the tubing isn't leaking into your abdomen? If this is new, and it sounds like it is, I would sure push for some answers. I'd want to rule out a malfunction...
View ArticleStomach Problems
My daughter is 30 has had Crohns like symptons for over a year but all tests have now said no evidence if crohns!! Bad enough but to add to troubles along comes papilledemas bilateral. Shes just had...
View ArticleStomach Problems
Hello Everyone, I also believe they are connected. However, its taken me several years to realize it. I was diagnosed with IH 9 long years ago, it seemed all I could get from the doctors was, well now...
View ArticleStomach Problems
Hi everyone. Still trying to work out how to use this site! dinosaur! lol. My daughter has had IBS symptoms for years. Never constipation, she wishes - always opposite! Both consultants say they are...
View ArticleStomach Problems
My gastro also wants to check me for bacterial overgrowth syndrome. I'm hoping to do that next year. Supposedly that can be treated with a round of a specific antibiotic....
View ArticleNew and need advice
Wonderful enlightenment! Txs. I'm in hospital with papiledema and the doctor doesn't believe I may have IIP because it came 16 in the lombar punction ( although my headache and other symptoms all...
View ArticleStrange symptoms from Topamax? Kinda freaked out
I was on Topamax for 4 weeks and had just titratec up to 100 mgs when I began having severe joint pain...knees, ankles, hands, even my toes. I too could barely walk even though I go to the gym every...
View ArticleWorking after Diagnosis
Howdy. I was diagnosed with IIH after a bout of meningitis last year. My pressures were so high that I actually caused a CSF leak out my ear. I was on diomax as well, and the side effects were...
View ArticleNew Member
Thank You Mary for sharing.. Its nice to chat with people who don't let their illness's define them. Thanks for the great support:) Chat soon Regards Janet...
View Articlenew member - question about lumbar punctures, etc.
One would hope that going to the ER with a complaint should get you SOME kind of care. I don't know if you can demand medical procedures, but it certainly could hurt to ask. I have had two LPs in the...
View ArticleBioFeedback?!
I have not, but I know that with some chronic pain, it is supposed to help you deal with it better. Your post is kind of short, so I'm not sure of the details. I also know many people that talk with a...
View ArticleWorking after Diagnosis
Hello, I'm so sorry you're having to go thru this. I was diagnosed in either 2007 or 2008, my memory is getting much worse lately so I'm not sure. However, WATER! Drinking lots and lots of water was...
View ArticleAbout 7 years down and still have side affects
Have you tried spacing your doses out a little? While I was on diamox and would get the tingles it was normally because I had taken my doses to close together. My neuro would always say two am and two...
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