Chiara Type 1
I do think shunts have a high failure rate. When you get a good one, you've got a gem! Shunts fail for various reasons. Sometimes they are defective from the manufacturer, sometimes they react to the...
View ArticleCould it be IH 13 year old daughter
It wouldn't hurt to schedule an appointment with a NS. ~Mary...
View Articlepain med combo - over-the-counter!!
Would this combo help with temp relief for a toothache...
View ArticleIIH without papilladema?
I would think it is possible, but I am not an expert on ANYthing medical, much less IIH! I do know that you can have hydrocephalus -- a very similar condition -- without any sign of pappilladema. ~Mary...
View ArticleIIH without papilladema?
Yes, it is possible to have IIh without papilladema. The IIH might not be severe enough to be affecting the optic nerves yet. When i was first examined I did not have papilladema and my Neuro thought...
View ArticleCan lasix - which I have available - be used for altitude sickness
Interesting question! That would be something to ask your NS or primary care doctor. However, if you increase your dosage, I thing you would be making a lot of in-flight pit stops! ~Mary...
View ArticleJust had a VP shunt placed
Hi Jess, I wish I could be of more help than I am, but it has been 14 years since my VP shunt was placed and I don't remember much. However, one thing I CAN tell you is that I DID NOT have anything...
View ArticleMy niece has hydrocephalus due to TBI 7 months ago. Had shunt placed
Shunts are very tricky things. Most NSs will avoid them and try other treatments first because of their high failure rate. Any foreign object in your body can be rejected, or cause complications. Not...
View ArticleWhat were others told about IIH when they were diagnosed?
Hello, Well, I'll tell you what I can remember. I was told they had no idea why I had it but one thing that seemed to be part of it was being overweight so I needed to lose weight. Done, 133pounds,...
View ArticleBalance
I can't answer whether it is a common symptom, but IIH, and any ailment that causes pressure in the head or inner ear, can cause balance issues. ~Mary...
View ArticleTurning shunt up ?
Hi Janet, I'm sorry I didn't answer you in a timely manner. Turning the shunt up really isn't an issue as it is done by magnet, but you already know that now. (Sorry, I'm late... :( ) However,...
View ArticleDoes IIH make it harder to have kids
IIH shouldn't make it any harder to get pregnant. However, your pregnancy could be more difficult or complicated -- meaning really just uncomfortable with increasing pressures in your head -- like...
View ArticleHospitalization numerous times
I know there have been several on this site who have been into the ER or hospital frequently. It's a hell of a life, I'm sure. Just reaching out to let you know, I hear ya... ~Mary...
View ArticleEye doctor said that I have papilledema,bt my mri ,mra,mrv,ct scan reports are
I guess what you do with the information is up to you! If you have papilledema, but you show no other symptoms of IIH, then you should consider yourself fortunate and move on. Certainly, this is...
View ArticlePeople always jump to conclusions. Read. Read. Read
...and some people write open-ended, ambiguous posts. ~Mary...
View ArticleWhat more can I do?
I don't understand why you can't take pain meds. Usually following surgery, doctors Rx meds to control pain. I would be seeking clarification, or a second opinion. Ask your primary care doctor to...
View ArticleI had a spontaneous cerebral spinal fluid leakage 10 years ago. Dr diagnosis
I had a spontaneous cerebral spinal fluid leakage 10 years ago. Dr diagnosis intracranial hypertension had surgery to repair the leak I did not have anymore symptoms until a year ago now Dr is talking...
View ArticleTook Diamox for too long
I'm pretty sure that as a result of taking Diamox for longer than my doctor suggested, I now cannot properly retain water. I pee 7-10 times per day with just 60 ounces of water per day. About 6 if I...
View ArticleI have just been diagnosed with IIH. Received a lumbar puncture on Friday
I have just been diagnosed with IIH. Received a lumbar puncture on Friday. My pressure was at 46. My ophthalmologist called in a prescription for diamox right away so I've been taking it since Friday...
View ArticleTook Diamox for too long
Sounds like Overactive Bladder. Have you see a doctor for this? Whether or not this is a result of taking Diamox, I can't say, but you should make a doctor aware of it to see if a treatment is...
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