Stomach pain due to drainage tube?
I had a vp shunt placed in 2007 for hydrocephalus rathkes cleft cyst removed from pituitary gland. Im approaching my 10 year anniversary. I had the normal abdominal pain after my surgery. Had a few...
View ArticleStomach pain due to drainage tube?
You are NOT crazy!!! I'm sure that the tube has became dislodged during pregnancy. This pain is NOT unusual, however, finding a NS that will believe you is the uncommon part! I don't know how to help...
View ArticleSevere headache and back cramps after lumbar puncture?
Try drinking plenty of water. It may help you replenish the fluids you lost during the LP and help you recover more quickly. If you are still feeling poorly, then contact your NS for advice. ~Mary...
View ArticleLooking for some ideas or support
I was referred to a neurologist for headaches but lost partial vision in my right eye the day of the appt. He sent me to the ER for an emergency lp and they admitted me. I've been here a week, had 2...
View ArticleIt has been almost two months that i am suffering
It has been almost two months that i am suffering from BIH...somedays i feel better somedays i feel that i am even going worse...its been really tough...i justwanted to know that howmuch time it ll...
View ArticleIs it Possibe to have IIH AND
Hello, I'm so sorry for what you're going thru. And YES! Unfortunately, after seeing many different, and different kinds of doctors, most of the ones that would even give me an opinion (I think some...
View ArticleI had my 1st shunt placed in 2004 worked wonderfully since
I had my 1st shunt placed in 2004 worked wonderfully since. I was diagnosed with PTC in 1992 and have caught with my head for years. Now in 2017 my shunt has failed and needs replaced. I had to beg and...
View ArticleI have just been diagnosed with IIH. Received a lumbar puncture on Friday
Diamox can cause headaches (oh, the irony) as well as the lumbar puncture. I did fine with the first two LPs but the third caused horrible bruising and soreness in my back. While the pressure pain was...
View ArticleDiamox - How long does it take to work
I also take 3000 mg of Diamox; pressure was still elevated at my last LP so I'm looking at getting a shunt in the near future. Diamox has also caused other concerns such as fatigue, acid reflux,...
View ArticleI was on Topamax for nerve pain and chronic muscle pain
I was on Topamax for nerve pain and chronic muscle pain. I must tell you it helped me alot! I absolutely loved it. However... something that I did not know was how this medication can make people on it...
View ArticleDiamox - How long does it take to work
New to all of this. 40 years old, had some visual distortion so I went to have eyes checked, sent to opthalmologist, sent to neuro opthalmologist... had MRI/MRV/bloodwork and finally a lumbar puncture....
View ArticleI have just been diagnosed with IIH. Received a lumbar puncture on Friday
Sounds like you had a spinal fluid leakage from lumbar puncture if it happened right after. Does the headache get better when you lie down flat and worse when you sit up?...
View ArticleWhat is the normal recovery time after repeated shunt replacements in the...
I'm wondering what the recovery time is. Ive had 3 shunt replacements between Dec 2016 and April 2017. I've had many periods between my last 2 shunt surgeries where my brain slows down and I have...
View ArticleI had a torn meniscus end of March
I had a torn meniscus end of March. After physio and rest it eventually came good. I now have been prescribed Diamox for high intraoccular pressure and the knee pain has returned. Are they related?...
View ArticleRecently diagnosed IH
Hi everyone! I was recently diagnosed with IH. I was diagnosed in April with pappiledema at an annual eye exam. I then developed an aching at the back of my skull, so decided to follow-up with my...
View ArticleQuestions about a vp shunt
I would like to know, how can you tell if your vp shubt is on and working properly? Will it affect your blood pressure?...
View ArticleCan getting pregnant help?
I have really severe intracranial hypertension! I have no pain meds for the pain. I have had stomach bypass surgery for weight loss. That my Dr said would help. It's has not helped me. I can't take any...
View ArticleCan getting pregnant help?
NO!!! Do whatever you want but pregnancy brings on hypertension period. Wanna push your luck,...
View ArticleQuestions about a vp shunt
I don't know but if you are uncomfortable, check and see if'ts stopped up or if u r worried enough call your drs. office or the hosptal nurse than answers questions. With IIIH, I wouldn't mess around...
View Article