Can going off diamox cause weight gain and pressure headaches?
I've known others that have lost weight while taking it, so it may have been doing something to help you with weight loss/maintenance. If the pressure headaches are back, you do need to talk to your...
View ArticleCSF Protein 64
Many things can affect the pressure reading, from time of day, to the position you are in when they do the tap. Also, 16 may not be high as far as the standard goes, but it may be too high for you. As...
View Articlepain med combo - over-the-counter!!
I am 32 years old. I was diagnosed with ra and fibromyalgia about 5 years ago been through 3 different doctors. I am now taking an antidepressant for ra and fibromyalgia and prescribed narco but my...
View ArticleFlare up while on Diamox?
I've been on Diamox for 14 years, and I still have pressure headaches, neck pain etc. I get concerned when my vision gets compromised. Are you having your vision monitored? You may need an increase, or...
View Articlepain med combo - over-the-counter!!
I really discourage people from trying things without talking to their doctors. Medical history, current medications and many other factors can impact what a person should or should not take. Just...
View ArticlePins and Needles
How long was she on Diamox, and did she ever have her blood checked? The tingling can be a sign of low potassium, and even if she is no longer taking the meds, if her levels dropped, she may need a...
View ArticleWhat does it mean if my symptoms are beginning to return after my lumbar...
CSF pressure fluctuates a lot throughout any given day. Diamox can help reduce the pressure, but doesn't eliminate it altogether. You will need to continue to be seen by the neuro and ophth to stay on...
View ArticleCan IIH ever go away completely?
Did they do any tests? Typically they will do an MRI, then if it is clear, they will do a spinal tap to measure her CSF pressure. If it is raised, then they would start her on meds. She should also be...
View Article15 year old daughter--possibly w/ IIH
I responded to your other post. I posted a link that may be helpful. Also, if you or your daughter are on FB, there are groups there that cater to teens/kids or parents of them with this condition. I...
View ArticleJust diagnosed a few months ago
Hello, If it were me, I would call again. I also keep notes on what's happening so I can always go back tell them what happened. These days my brain can't keep track of it otherwise. Good luck, hang in...
View ArticleIS BOTOX THE LAST RESORT FOR MIGRAINES IF MED'S & NERVE BLOCKS DON'T WORK?...
Hello Przesmycki, So sorry to hear that you're going thru such hell. I know it tho, I've been there. I was so desperate a couple of weeks ago I had read about an ear piercing that is done thru an...
View ArticleIS BOTOX THE LAST RESORT FOR MIGRAINES IF MED'S & NERVE BLOCKS DON'T WORK?...
I had Botox shots and agree that they are the worst pain ever. I had some drooping as well, and even now, a couple of years later, I still have mild drooping in my right eyebrow area. It also did...
View ArticleJust diagnosed a few months ago
Sorry for the late reply. You do not have to have swollen optic nerves to have IH or IIH. I'm going to provide you with a link to the Intracranial Hypertension Research Foundation....
View ArticleDiamoxx Joint Pain
Has she had blood work done to see if she is low in potassium? Being deficient in that can cause a lot of body pain. I have to have a script to keep in safe range. While they do that, it would be good...
View ArticleDo your headaches worsen in cold weather?
I'm always with my winter hat on , on winter months...
View ArticleNew to the forum
I've never heard of Yoga as being a cause of IIH. Sometimes if you have it, exercise can make you feel worse, but that is typically more intense workouts. I'm not familiar enough with Yoga to know if...
View ArticleDiomax
Here is a link about some of the side effects of Diamox: https://www.cardiosmart.org/Healthwise/d001/61/d00161 I have really low BP, and I also take Lasix with my Diamox, which causes low BP. I don't...
View ArticleVP Shunt - Headaches and other issues
I'm not an expert, I can only share what I have experienced. I got VP Shunt in left Ventricle, programmable with anti siphon. It took me a year to start feeling a difference in a better way. I am post...
View ArticleShould I go ahead with vp shunt surgery?
This is a huge decision. Not everyone with IH has optic disc swelling, I don't. For me, I've decided that I will do whatever I can to medically manage my condition, only looking at surgery if my vision...
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