CSF pressure fluctuates a lot throughout any given day. Diamox can help reduce the pressure, but doesn't eliminate it altogether. You will need to continue to be seen by the neuro and ophth to stay on top of the optic nerve swelling. I wish I could tell you that Diamox or other meds are a cure, but sadly, they aren't. They are methods to manage the pressure.
I recommend that you go to the IHRF website and read up in IH there. http://ihrfoundation.org/
There is a lot of good informati...
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