Resolving intracranial hypertension
I would think that the medication lowered her pressure. Also, CSF replaces itself throughout the day, and when the tap was done, it might have been at a low point in the day. Are they keeping her on...
View ArticleLumbar Puncture and Diamox
What was the opening pressure? Normal can vary for people. Some people find that anything over 12-15 is painful and causes problems. Younger people tend to need much lower pressures to have lessened...
View ArticleDiamox - How long does it take to work
I'm on 1000mg diamox as well and on tromolol eye drops and I'm still getting vision loss. It just depends on the person. It doesn't work for everyone. Others take different combinations, it's just...
View ArticleIIH affecting my teenage daughter
Of course this group is also wonderful and will provide support as well, yet it isn't always as active as I'd like it to be, so responses can be limited to just one or 2 people....
View ArticleIIH symptoms running my life
Well. It is hard to know where to start. If your electrolytes are low, did they put you potassium? What was your potassium level? Deficiency in that area can cause the tingles. You are on a lot of...
View ArticleNeck and Joint Pains
I have neck and back pain as well. My neck sometimes hurts worse than my headaches. Warm moist heat helps me a lot. It seems like many of us have joint pains along with IH. I was actually diagnosed...
View ArticleIIH symptoms running my life
It sounds like your doctor knows and understands that your are suffering. Not all of them seem to actually fully understand how much pain we are in. A torodol injection used to knock out my worst pain...
View ArticleBotox for Chronic Headache
Thank you for the warning about the anti-toxin. I have not gotten far enough into research about it to see that part yet! There are so many things to try but some of the options are just bad, worse, or...
View Articlediamox side effects
Have you had blood work done? If your potassium is low, that can cause tingling. If you haven't had it done, it would be a good idea to do that soon, as low potassium can also affect your heart. I...
View ArticleHorrible headaches for months... Turns out it was IIH
If you have any questions, you can start your own post and we will do our best to reply....
View ArticleDoctors confused me so much
Did they find a cause for your daughter's case? Was it triggered by medication, Chiari malformation, etc? I have little swelling, but remain on meds due to the headaches and other symptoms. People do...
View ArticleRecently diagnosed and have some questions
Welcome to the forum. First, I would really watch the shortness of breath if this is new for you. It is listed as a serious side effect. Not trying to scare you, but it is something to pay attention...
View ArticleBeginning the process
Sorry for the slow response. The neuro ophth will likely do more indepth eye tests to check for vision loss, swelling and the degree etc. The typical course for diagnosis would be this, then an...
View ArticleRecurrence of IIH
It never really seems to go away, but people do go into remission, which it sounds like you did. If it is affecting your vision, there are options such as the optic nerve sheath fenestration procedure...
View ArticleVP shunt
Brit.....sorry I can never remember how to spell names. Anyway it might be helpful if you were to visit the Chiari group. Welcome, Fred...
View Articlecranial sacral therapy?
I've heard mixed reviews on this. One set of thoughts is that no amount of massage is going to move the bones around for it to be effective. Others say it worked. My thought is for those who had luck,...
View ArticleVP shunt
Hi Brittney, I have a programmable VP shunt and have had no complications. I do not have IIH though, but hydrocephalus -- similar symptoms and treatments, but different causes. The worse part of...
View Articlefelt like lightning
Hi cjones, You mention surgery in 2005. Is this pain associated with the LP shunt current? Or are you asking about an old injury? ~Mary...
View ArticlePain relief options?
It depends. When it is a pressure headache, there really isn't much you can do. Are you taking Diamox? Lasix? Sometimes additional diuretics can help. I take both regularly, and add HCTZ on really high...
View ArticleI need help figuring out my next move
Has he started you on any kind of treatment plan? Diamox? Lasix? As Mary said, if you have a good relationship with him, you can ask him if he knows anyone who has more experience with IIH. You can...
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