Serious Question about medical marijuana
Thank you for responding with this.. I wish your daughter many well wishes and nothing but luck with everything.. This conditions terrible and has taken my life away from me... Im glad she's found...
View ArticleNEED ADVICE! ~ Pseudotumor Cerebri & Spinal Tap
This post is pretty old, so you may want to start a new one with your question about a second opinion....
View ArticleOmfg.. NOT AGAIN!!?!!
I'm so sorry you are having problems! As Mary said, there are some people who have loads of problems with their shunts, while others go years with no issues whatsoever. I sure hope that they get it...
View ArticleDiamox and side effects
Happy to help. I rarely have problems with it and have even questioned if I have it at all until I get an episode. It seems to flare up now and then and that vertigo sensation is really unsettling. It...
View ArticleIIH and Depression
Indeed. You almost have to let go of the old you in so many ways and learn to live with the new you. Depression goes along with so many illnesses. Sometimes there is also just sadness which is...
View ArticleSharp, shooting, stabbing,pressure pains in head and neck
Welcome! What is happening for you thus far? Are you taking medication, have you had your eyes looked at? It is overwhelming at the beginning....
View ArticleNew IH Patient Support Group Jacksonville FL
This is a pretty old post, and I'm not sure if any of these members are still active here. You may not get a response about the group they are talking about....
View ArticleDiamox Side effects
Diamox does have side effects, but they usually go away after a month or so. It is also important to stay hydrated and to be sure to have blood work done to watch your potassium. As for the pressure...
View ArticleOptic nerve sheath fenestration
Yes, that is odd, since Diamox is also used for Glaucoma. I will say that my ocular pressure has been slightly elevated in the past, and I'm also taking 1000 mg of Diamox. Mine isn't high enough that...
View ArticleQuestions and concerns
Hi everyone I hope this day finds you all feeling okay. We have a few new members, and I want to welcome them. Welcome! If you have questions, I am happy to try to answer them, but please, use the...
View ArticleDiamox/ Shunt
I have IH and the pressure is terrible. My dr just started me on diamox and its my 3rd day. Does anyone feel it works? How long did it take to feel relief. Did anyone try diamox first then end up with...
View ArticleDiamox/ Shunt
I'm currently taking 1000mg diamox and using tromolol eye drops. My doctors have discussed an optic nerve sheath fenestration and or a vp shunt. These 2 are certainly in the table for me. I'm currently...
View ArticleUsing forums for research
You are more than welcome. I forget myself how many useful posts there are in this forum, and was reading through some of them today. That is why it is a good idea to carefully title them so others can...
View ArticleTips for starting a discussion
At the top of the page are 2 options. One is to start a discussion, the other is to ask a question. If you ask a question, it limits the type of responses you can get from a person. Example, if you ask...
View ArticleType of doctors
You really need a neuro opthomologist. Whom will then refer you to a Neuro surgeon if a shunt is needed. You need to make sure you have someone monitoring your vision closely and a neuro opthomologist...
View ArticleLasix and head pressure
Lasix is a diuretic (water pill), not really a headache medicine per se, It helps with headaches by reducing fluid pressure when the fluid is urinated out of the body. So, with that in mind, lasix is...
View Articlea neurosurgeon in Tampa?
I've posted a link to the IHRF in other posts and they have a section that is helpful in finding doctors. http://ihrfoundation.org/...
View ArticleDiamox - How long does it take to work
I'm on 1000 mg and 20 mg of Lasix. I know some women who take as much as 3000 mg of Diamox. It depends on the doctor, and how you respond. I hope they can get this figured out for you....
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