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Recently diagnosed and looking for hope :)

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Welcome, and I'm so sorry I'm late to reply. I had dental surgery and have been down for over a week. Have they started you on medication yet? The first thing you need to do is take a deep breath. It can take awhile for the medication to work, but many people are managed with Diamox and sometimes Lasix. I know it can be overwhelming, but going to the IHRF is an excellent suggestion. They have very factual information there, and are a great resource. They also have a FB page if you are...

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