Recently diagnosed IH
Hi everyone! I was recently diagnosed with IH. I was diagnosed in April with pappiledema at an annual eye exam. I then developed an aching at the back of my skull, so decided to follow-up with my...
View ArticleQuestions about a vp shunt
I don't know but if you are uncomfortable, check and see if'ts stopped up or if u r worried enough call your drs. office or the hosptal nurse than answers questions. With IIIH, I wouldn't mess around...
View ArticleCan getting pregnant help?
Hello, I don't know about the pregnancy part of it but I do know that my doctors told me that my weight was my problem also. They were so wrong! Had gastric bypass, lost weight, no change in the pain....
View ArticleSomething new
Oh my! Thank you to you your husband! This is something I've never heard about. I'll be interested to hear from others if they know anything about it or not. Thank you again, I needed some Hope this...
View ArticleI have had2 back surgerys and countless injections .I went
I have had2 back surgerys and countless injections .I went to my pain management doctor and he said my urine tested positive for Vicodin. I get prescribed morphine, not sure what happened there the...
View ArticleIIH and Effexor
Greetings, I've been diagnosed with IIH in 2012. I took Topamax Diamox which didn’t make me feel any better but all my symptoms were gone after having lumbar puncture. I got pregnant months later and...
View ArticleWeed
I have been told to try weed to help with the pain. Now I'm not a person the complains about pain. I also don't really like the idea of weed. But I won't get into that. I would like to know if anyone...
View ArticleDiamox and lumbar puncture
Hi, I'm new here and have a question about my daughter's upcoming lumbar puncture. She's on Diamox and Topomax, will they have an affect on her opening pressure? So far nothing has been said about her...
View ArticleUndiagnosed IIH
Hi everyone - just after some advice and words of encouragement really. Symptoms (started 4 months ago): - daily headaches - pulsing ears - whooshing sound in ears when pending, straining and lifting -...
View ArticleIs anyone else finding it hard to function or get confused at work
I know how you feel! I was not in pain, but I suffered from confusion and concentration issues so badly that I was in danger of losing my job. I kept telling the doctor that I had a traffic jam in my...
View Articlewhat over the counter meds to use or should i just go ER for help
Back pain out of my pain pills what to take to hold me over till next refill I am going crazy lack of sleep I could just fall to my knees and cry didn't think I was hooked until I ran out of these...
View ArticleIntracranial hypertension
Hello, I'm sorry to hear that you're going thru such a mess. The beginning of my diagnosis was crazy also, but not at all like yours. I wanted to respond to you because I saw no one else had and I know...
View ArticleMy job is carere and I work in the public I have
My job is carere and I work in the public I have to use my veicle to travel from home to home and I have been diagnosed with iih will this effect me doing my job long turm...
View ArticleDiamox Side effects
Hello Everyone, I recently found out that I have a portion of my frontal lobe in my nasal cavity, and the doctor that I have been seeing want to operate and remove the tissue on the 15th of November....
View ArticleI've been on oxycodone for 2 months and I also get shots in My back
I've been on oxycodone for 2 months and I also get shots in My back, I've run out of my medicine 1 1/2 weeks early and still working full time and have kids at home. The feeling I'm having is so...
View ArticleDiamox Side effects
Hi everyone! It is such a relief that I stumbled upon this discussion. I am 23 years old. Just couple of months back, I had some vision issues and the eye doctor suspected IIH due to my swollen optic...
View ArticleDiamox Side effects
Hi everyone! It is such a relief that I stumbled upon this discussion. I am 23 years old. Just couple of months back, I had some vision issues and the eye doctor suspected IIH due to my swollen optic...
View ArticleNewly diagnosed with Intracranial hypertension
I’m newly diagnosed with intractable hypertension. Immediately my doc started me on diavox and nerontin which was a epic fail. The side affects were awful. Now I’m on topamax. But my question is, is it...
View ArticleI have been dx. With COPD. It was explained to me
I have been dx. With COPD. It was explained to me, I can inhale oxygen but I cannot exhale, it stays trapped in my lungs so oxygen levels are good. I have very difficult time breathing most days I have...
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