My medicine seems not to be working
Hello, I hesitated to answer this as I don't want to sound negative but my short answer is no, my meds, for me, much of the time don't give me relief from my headpains. That is just my reality these...
View ArticleIIH and still testing...
Hello Ms Kate, I'm so sorry that you're having to go thru this. Unfortunately, a long laundry list of symptoms, at least for me, seems to go along with all of this. I think that is part of the reason...
View ArticleIs there help with medication costs?
I was diagnosed with IH 6 years ago and have not been able to work. Fortunately I am covered under my husbands work insurance. however this year they did not pick up Kaiser and we had to switch to Blue...
View ArticleLiving and dealing with IIH
I was diagnosed with IIH back in August and my neurologist has been frequently changing my medication dosages. I was on a 1000 mg of acetazolamide and that seemed to work best. I, unfortunately, was...
View ArticleHow to work
I'm finding it really hard to hold down a job. The dizziness,lightheaded and all the pain make it hard to keep a job. How do you guys hold down a job?...
View Article17 y/o daughter diagnosed with IIH & Chronic Migraine - Perth
Is there anyone in Perth, Australia in this group? A parent of a child with IIH maybe? I'm just finding it hard to find someone to talk to about what my daughter is going through. Thanks, Sue...
View ArticleLumbar puncture with opening pressure of 23.
Hello, My doctor thinks I might have IIH. I had a lumbar puncture today and am waiting for results. Does anyone know if an opening pressure of 23 is high? Would this mean I have IIH? Thanks...
View ArticleVery confused
So I'm very confused as to why I have IiH, but I'm not over weight. So they are telling me because of narrowing in my brain. How did you deal with this disorder and talk to your family. All I want to...
View ArticleDiamox Side effects
Hi everyone! It is such a relief that I stumbled upon this discussion. I am 23 years old. Just couple of months back, I had some vision issues and the eye doctor suspected IIH due to my swollen optic...
View Articleintracranial hypertension
Im still waiting to see my dr. But in the meantime i have been having over things pop up. Can intracranial hypertension cause you to have a fever?...
View ArticleTrace Glaucoma?
Has anyone ever been diagnosed with trace glaucoma ? That's what my eye doctor said I have today right before he suggested a SLT procedure. That procedure is usually recommended for full blown...
View ArticleCan IIH ever go away completely?
Just posting on random IIH threads. I had it and when I was first diagnosed I would google it all the time and always find bad news. I promised I'd come back and say if I got better. I was on diamox...
View ArticleDiamox and exercise
I've now been on Diamox since February. I was taking 1000mg a day but recently convinced my doctor to lower the dosage to 500mg a day under the agreement that I lose weight. My problem is I find that...
View ArticleHow high is high?? Lp pressure was 53
Newly diagnosed and trying to figure it all out. I know less then 20 is norm but how high is 53? Thxs...
View ArticleNewly diagnosed.
Hi all; I'm just wondering if anyone can recommend a neurologist and ophthalmologist that specializes in IIH? I have had symptoms for years, but strangely enough ( or maybe not) just recently started...
View ArticleNew to IIH - looking for some help - Australia.
Hi Diane and others in this link! I live in Perth and have just been diagnosed with IIH. Have had symptoms off and on for years and was actually diagnosed with MS years ago. Have recently had another...
View ArticleI see a windowframe and through that window there is a white board plaster sheet
I see a windowframe and through that window there is a white board plaster sheet about roughly 3 feet away from the window. There is a shadow on the board that looks like it is moving very slowly to...
View ArticleIIH Diagnosis
Thanks for the responses everyone! I will definitely request labs be run if I have to have another LP. I have been on Diamox for about a month now and have noticed that my muscles seem to fatigue very...
View ArticleFatigue
OMG, I think the fatigue is just as bad as the horrendous headaches. I work in corporate management 60 plus hours a week but that's not new, what's new is this going from 100 to zero in seconds flat. I...
View ArticleIIH Diagnosis
Hi all! I was recently diagnosed with pseudotumor ceribri but do not feel like my doctors have fully exhausted all the possibilities. I am hoping to get more information so I will know what to ask my...
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